Eurordis- European Organization for Rare Diseases

The European Organization for Rare Diseases (EURORDIS) is the voice of 30 million people affected by rare diseases throughout Europe. EURORDIS is a non-governmental patient-driven alliance of organizations and individuals active in the field of rare diseases in Europe. EURORDIS represents 695 rare disease patient organizations in 63 countries, covering more than 4000 rare diseases. EURORDIS supports the creation and development of rare disease national alliances and disease-specific European federations and networks. 

Type: pan-European disease-specific organization

Disease area: Rare diseases

Representative: Jean-Louis Roux, Public Affairs Director

Address:
c/o Plateforme Maladies Rares
102, rue Didot
75014 PARIS
France

Contacts:
Tel:  +32 2 535 75 23
Email: jean-louis.roux@eurordis.org

Link to site: www.eurordis.org